Women and Autism - My Musings

Diagnosed with Asperger’s syndrome (an Autism Spectrum Disorder) three years ago, I chose to embark on a collaborative art project to explore the issues around ‘women and autism’, which I’ve covered here in ‘Women and Autism - A Collaborative Artistic Partnership’. As I’ve learnt more about the condition over the years, I’ve noticed considerable gender differences in perceptions of autism; its presentation and coping strategies between men and women – to the point where women are often misdiagnosed or undiagnosed with autism. I’ve questioned this considerably and the reasons behind it. I feel there’s certainly an increase in recognition in this field of thought, especially from those already with a fair degree of autism awareness - but not so much beyond it. For beyond it still lies a more outdated and stereotypical image of the autistic male. An update and restart are needed.

I’ve summarised my musings in my exploration to consider and understand issues around ‘women and autism’ in a piece of creative writing, with the text transcribed out below the image.

“Men. Why is autism so different in men than in women? Or is it…? Why is the male ‘form’ the accepted norm? the one where people have this ‘aha’ moment and realise that ‘yes sure, I’ve heard of this Autism business!’ and they revert back to TV shows and films. ‘Atypical’ and What’s eating Gilbert Grape’. The media conveying a one-sided view of what is. And-how-it-is. And yet missing out on what oh-so-isn’t… why is Autism so much more apparent and ‘obvious’ in men? We have a subtler presentation they say. But the most dismissive comment of all: ‘Oooh, but you don’t look (how does one look autistic anyway?) autistic.’ How dare you. a compliment you meant? Oh. I’m sorry. I didn’t realise that disregarding who I am and my total being is a compliment. For ‘so what’ if I’m autistic? Poor me…? An all cast set of male actors. Who are unlikely autistic, playing autistic men. In Science, Maths, Psychology. Historically. White men. All making inferences, studies, research, analysis – on Autism. What could they know? Or wish to consider about in female autistics? ‘Autism is Autism’ they say. Why are we misdiagnosed? Misunderstood. Undiagnosed. Why are we still playing catch-up with men? Every field. Yes, it’s unfair, blah, yes. But it’s not a whining point. If women are not being diagnosed, or misdiagnosed, their Autism is not being picked up on. Then this is a very serious point. And a subtler ‘presentation’ doesn’t mean we’re not struggling. That it’s not valid. That it’s less of an issue. That we can somehow seamlessly cope with it, because ‘we don’t look it’! We’re often over-compensating. And that’s hard work! The exhaustion, harshness, loudness, brightness. We feel this. Separate. A cultural gap. Initially misinterpreted as shy. Because women are more likely, at a societal level, to be considered shy… Bollocks. Gender differences. I am of course more than a label. More. But at the same time, this label can be helpful: liberating and empowering. And autistic women shouldn’t be left out here. Leave no-one behind they say. Well mean it.”

And it’s not just ‘women and autism’ that is the issue here either. For there are the differences that exist at a cultural and ethnic level. I’m discovering this more and more as I meet different people from the spectrum here in New York; all of whom have their various backgrounds and histories. Different school systems and state support. And the discussion and musings continue.

What are your views, if any, on ‘women and autism’? I’d be happy to hear to hear from you.