Actionplay: Striving to Build a More Inclusive World!

I had the joy of being invited to see Actionplay - in Action - quite literally recently. It was for one of their AIMS workshops, which consists of around twenty teens and young adults (13-22 years), on the autistic spectrum (and related conditions), to come along and be part of a 90-minute drama-impro workshop in central Manhattan. The goal of the workshop programme? To encourage greater confidence and increase communication and social skills among attendees.

Based in New York City, Actionplay is a non-profit dedicated to providing children, teens, and adults on the autism spectrum and related conditions equal access to education, arts and culture. Their programmes are open to the general public, and involve creative learning environments, professional development, and training modules to those on the spectrum to experience the arts.

I’d been in touch with Aaron Feinstein, their Executive Director and Founder, a few times and he suggested that the best way to see what they get up to is to come along to one of their sessions. I couldn’t agree more! So there I was, Sunday morning, getting off at Penn Street station and strolling down to the mid-town rehearsal space, not quite knowing what to expect… But intrigued and excited all the same.

Initially, I thought I’d be the ‘quiet observer’ on the periphery - but could not have been more wrong. From the outset I was involved in the warm-up tasks; completely out of my depth as I couldn’t remember the last time I’d even expressed myself in terms of shapes, sounds and movement via my body. It really took me away from my mind though; a place that I’m sure many adults can relate living their lives from. The respite was astonishing. But more so was what was going on around me: the teens and young adults’ enthusiasm and appetite for getting involved. And then there was the talent! These kids were really good. I also found them to be very respectful towards one another – listening well to each other, being quiet when someone else was performing.

The tasks built up in momentum slowly, as the participants got more into them. Music aided these exercises, with Gabriel Lit on the piano entwining apt melodies with the movements. The activities were varied and involved anything from passing a sound around the room in a circle, and adding your own - to giving a 30-second pitch of their ideas for the future Actionplay concert. This latter task was then followed up with the group being split into two, and one idea being picked by each group – creating a five-minute rendition of what the show could look like. Ideas were formulated and explored, people were free to express themselves within the context of the exercises – and most importantly; fun was had and there was a great sense of buoyancy.

And I know that this was all a direct reflection from Aaron and his incredible team of staff and volunteers. There was approximately one staff member to every two/three participants. What I noticed was how dedicated, enthusiastic and compassionate they all were. They would turn up half an hour before the session to ensure careful planning and addressing any updates, while another half hour was given after the session to discuss any issues within the session and to then wrap up and look forward to future sessions. The volunteers came from all backgrounds including teaching and the arts, but the real thing that stood them apart was their passion for accessibility to the arts and their genuine desire to be helping these individuals in obtaining this.

What struck me the most was having this space and programme available, full stop. These teens and young adults have a place to go where they channel themselves, develop themselves and be with others on the spectrum – and to ultimately do something that they enjoy.

It was wonderful and a true eye-opener to attend the workshop. The most surreal thing was that I could tell that each and every person wanted to be there, and there was this real tangible buzz of energy – a great force of positivity, power and intent of creative endeavours. Amazing…

How did I feel after? Well I was quite exhausted and exhilarated – and both in equal measures. Shattered because it was such an intense period of high-intense activity, with different things happening all around – but exhilarated because it was all so thrilling to witness. Exciting in that there was this amazing opportunity for those on the spectrum to come and be a part of – that they could be alongside staff and volunteers who are tremendous, inclusive-centric and truly able to support them. How incredible 😊

A big thanks to Aaron and the team for letting me take part in one of Actionplay’s workshops! Find out more about them on their website: http://actionplay.org/

Women and Autism - A Collaborative Artistic Partnership

Interested in the theme of ‘Women and Autism’ and my desire to collaborate with autistic artists, I set out a proposal to New Jersey-based arts organisation Arts Unbound. I wanted to run a collaborative arts project that would involve group discussions, creative exploration and practical participation with each artist being asked to work with, and respond to the other artists’ approach, ideologies and physical work. The overall aim was to test the limits of collaborative working amongst those with autism, and to cross-pollinate the various layers of each individual’s creative visions and working methods - with the results to then be exhibited in a collaborative group exhibition. Exciting stuff!

Why ‘Women and Autism’ as the theme? Well, historically it was thought that women were less likely to be autistic than men, however recent research has highlighted the challenges in identifying autism in women. It is now recognised from research, clinical practice and anecdotal reports that many autistic females, or those who demonstrate the less traditionally obvious traits of autism, are simply not recognised. This can result in misdiagnosis, late diagnosis, or women not being diagnosed at all. As an autistic woman myself who was diagnosed in adulthood, I am also interested in the challenges faced by other autistic women and the perception of autism in women as a whole.

Arts Unbound put up a ‘call-out’ to female artists on the autistic spectrum, who were diagnosed in adulthood, to take part in the workshops. Regrettably we could only find one artist happy to partake, but still decided to go ahead and to run the project as a collaborative partnership. With hindsight, this actually worked very well! I took away a lot of learnings from the process and realised that there’s a lot to manage when running such a workshop. After running these two sessions, I feel a lot more confident, and have a far better idea of what works well - and conversely less so.

Maybellene working on a word association task

Session one: me working away on a task

Work in progress

My participant in the project, Maybelline Gonzalez (@MsMaybellene), is a very talented artist from New York, who works primarily in collage. Maybelline and I met on two occasions and I orchestrated discussions around the following questions and topics:

• Do you feel that autism is perceived or recognised as a ‘male’ condition?
• It is often said that the differences autistic women experience is of a subtler presentation, or may appear so to others. How do you feel about this? 
• Some autistic women feel that they are masking their autism to try and hide the fact that they feel different. Do you feel you mask your autism?
• As women, we are often told that we don’t ‘look’ or ‘seem’ autistic. Have your experienced this? 
• With less ‘obvious’ autistic traits, do you feel you have to prove yourself as being autistic?  
• What would we like to tell the world about being autistic and female?

Session two: Maybellene working on a collage piece

Each discussion was interjected by an arts-based activity that was collaborative in nature. For instance: a word association task based on our discussions; a collage summarising a particular feeling we experience; or abstract mark-marking to depict our difficulties in being autistic.

Collaborative text exercise exploring our own narratives within the context of ‘Women and Autism’

Creating a collaborative collage to explore the feeling of overwhelm and the consequent exhaustion we both experience

The discussions were truly fascinating as I considered aspects of autism and women that I previously hadn’t thought of before, for example, by considering the history of who has previously been studying autism; i.e. men. Maybelline’s experiences also fed into my own; both different yet completely relatable. The collaboration enabled me to think in different directions to my own.

An art piece created reflecting on the theme of ‘Women and Autism’ - first half

An art piece created reflecting on the theme of ‘Women and Autism’ - completed!

Overall, the process of collaborating, for me, was incredible. I felt this really came together in the second session once we’d started producing work together. At times it was nerve-wracking: to hand over/let the other person complete/add to your art work. However, once I’d allowed this to happen and for the trust to form, the outcome was remarkable. To create a shared vision in collaboration with another person was a very powerful feeling and something I would certainly like to try again. Going forwards, I’ll be creating more art works around collage – a medium that Maybellene uses – and effectively keeping our collaborative efforts going.

Our work forms part of the ‘Coaction’ exhibition which is currently being shown at the Dora Stein Gallery, Arts Unbound in New Jersey. If you’re in the area, please pop in and visit! 😊

Arts Unbound in New Jersey

'Women and Autism' - part of the 'Coaction' group exhibition at the Dora Stein Gallery - Image 1

'Women and Autism' - part of the 'Coaction' group exhibition at the Dora Stein Gallery - Image 2

'Women and Autism' - part of the 'Coaction' group exhibition at the Dora Stein Gallery - Image 3