Women and Autism - My Musings

Diagnosed with Asperger’s syndrome (an Autism Spectrum Disorder) three years ago, I chose to embark on a collaborative art project to explore the issues around ‘women and autism’, which I’ve covered here in ‘Women and Autism - A Collaborative Artistic Partnership’. As I’ve learnt more about the condition over the years, I’ve noticed considerable gender differences in perceptions of autism; its presentation and coping strategies between men and women – to the point where women are often misdiagnosed or undiagnosed with autism. I’ve questioned this considerably and the reasons behind it. I feel there’s certainly an increase in recognition in this field of thought, especially from those already with a fair degree of autism awareness - but not so much beyond it. For beyond it still lies a more outdated and stereotypical image of the autistic male. An update and restart are needed.

I’ve summarised my musings in my exploration to consider and understand issues around ‘women and autism’ in a piece of creative writing, with the text transcribed out below the image.

“Men. Why is autism so different in men than in women? Or is it…? Why is the male ‘form’ the accepted norm? the one where people have this ‘aha’ moment and realise that ‘yes sure, I’ve heard of this Autism business!’ and they revert back to TV shows and films. ‘Atypical’ and What’s eating Gilbert Grape’. The media conveying a one-sided view of what is. And-how-it-is. And yet missing out on what oh-so-isn’t… why is Autism so much more apparent and ‘obvious’ in men? We have a subtler presentation they say. But the most dismissive comment of all: ‘Oooh, but you don’t look (how does one look autistic anyway?) autistic.’ How dare you. a compliment you meant? Oh. I’m sorry. I didn’t realise that disregarding who I am and my total being is a compliment. For ‘so what’ if I’m autistic? Poor me…? An all cast set of male actors. Who are unlikely autistic, playing autistic men. In Science, Maths, Psychology. Historically. White men. All making inferences, studies, research, analysis – on Autism. What could they know? Or wish to consider about in female autistics? ‘Autism is Autism’ they say. Why are we misdiagnosed? Misunderstood. Undiagnosed. Why are we still playing catch-up with men? Every field. Yes, it’s unfair, blah, yes. But it’s not a whining point. If women are not being diagnosed, or misdiagnosed, their Autism is not being picked up on. Then this is a very serious point. And a subtler ‘presentation’ doesn’t mean we’re not struggling. That it’s not valid. That it’s less of an issue. That we can somehow seamlessly cope with it, because ‘we don’t look it’! We’re often over-compensating. And that’s hard work! The exhaustion, harshness, loudness, brightness. We feel this. Separate. A cultural gap. Initially misinterpreted as shy. Because women are more likely, at a societal level, to be considered shy… Bollocks. Gender differences. I am of course more than a label. More. But at the same time, this label can be helpful: liberating and empowering. And autistic women shouldn’t be left out here. Leave no-one behind they say. Well mean it.”

And it’s not just ‘women and autism’ that is the issue here either. For there are the differences that exist at a cultural and ethnic level. I’m discovering this more and more as I meet different people from the spectrum here in New York; all of whom have their various backgrounds and histories. Different school systems and state support. And the discussion and musings continue.

What are your views, if any, on ‘women and autism’? I’d be happy to hear to hear from you.

Women and Autism - A Collaborative Artistic Partnership

Interested in the theme of ‘Women and Autism’ and my desire to collaborate with autistic artists, I set out a proposal to New Jersey-based arts organisation Arts Unbound. I wanted to run a collaborative arts project that would involve group discussions, creative exploration and practical participation with each artist being asked to work with, and respond to the other artists’ approach, ideologies and physical work. The overall aim was to test the limits of collaborative working amongst those with autism, and to cross-pollinate the various layers of each individual’s creative visions and working methods - with the results to then be exhibited in a collaborative group exhibition. Exciting stuff!

Why ‘Women and Autism’ as the theme? Well, historically it was thought that women were less likely to be autistic than men, however recent research has highlighted the challenges in identifying autism in women. It is now recognised from research, clinical practice and anecdotal reports that many autistic females, or those who demonstrate the less traditionally obvious traits of autism, are simply not recognised. This can result in misdiagnosis, late diagnosis, or women not being diagnosed at all. As an autistic woman myself who was diagnosed in adulthood, I am also interested in the challenges faced by other autistic women and the perception of autism in women as a whole.

Arts Unbound put up a ‘call-out’ to female artists on the autistic spectrum, who were diagnosed in adulthood, to take part in the workshops. Regrettably we could only find one artist happy to partake, but still decided to go ahead and to run the project as a collaborative partnership. With hindsight, this actually worked very well! I took away a lot of learnings from the process and realised that there’s a lot to manage when running such a workshop. After running these two sessions, I feel a lot more confident, and have a far better idea of what works well - and conversely less so.

Maybellene working on a word association task

Session one: me working away on a task

Work in progress

My participant in the project, Maybelline Gonzalez (@MsMaybellene), is a very talented artist from New York, who works primarily in collage. Maybelline and I met on two occasions and I orchestrated discussions around the following questions and topics:

• Do you feel that autism is perceived or recognised as a ‘male’ condition?
• It is often said that the differences autistic women experience is of a subtler presentation, or may appear so to others. How do you feel about this? 
• Some autistic women feel that they are masking their autism to try and hide the fact that they feel different. Do you feel you mask your autism?
• As women, we are often told that we don’t ‘look’ or ‘seem’ autistic. Have your experienced this? 
• With less ‘obvious’ autistic traits, do you feel you have to prove yourself as being autistic?  
• What would we like to tell the world about being autistic and female?

Session two: Maybellene working on a collage piece

Each discussion was interjected by an arts-based activity that was collaborative in nature. For instance: a word association task based on our discussions; a collage summarising a particular feeling we experience; or abstract mark-marking to depict our difficulties in being autistic.

Collaborative text exercise exploring our own narratives within the context of ‘Women and Autism’

Creating a collaborative collage to explore the feeling of overwhelm and the consequent exhaustion we both experience

The discussions were truly fascinating as I considered aspects of autism and women that I previously hadn’t thought of before, for example, by considering the history of who has previously been studying autism; i.e. men. Maybelline’s experiences also fed into my own; both different yet completely relatable. The collaboration enabled me to think in different directions to my own.

An art piece created reflecting on the theme of ‘Women and Autism’ - first half

An art piece created reflecting on the theme of ‘Women and Autism’ - completed!

Overall, the process of collaborating, for me, was incredible. I felt this really came together in the second session once we’d started producing work together. At times it was nerve-wracking: to hand over/let the other person complete/add to your art work. However, once I’d allowed this to happen and for the trust to form, the outcome was remarkable. To create a shared vision in collaboration with another person was a very powerful feeling and something I would certainly like to try again. Going forwards, I’ll be creating more art works around collage – a medium that Maybellene uses – and effectively keeping our collaborative efforts going.

Our work forms part of the ‘Coaction’ exhibition which is currently being shown at the Dora Stein Gallery, Arts Unbound in New Jersey. If you’re in the area, please pop in and visit! 😊

Arts Unbound in New Jersey

'Women and Autism' - part of the 'Coaction' group exhibition at the Dora Stein Gallery - Image 1

'Women and Autism' - part of the 'Coaction' group exhibition at the Dora Stein Gallery - Image 2

'Women and Autism' - part of the 'Coaction' group exhibition at the Dora Stein Gallery - Image 3